Blind Spot: Understanding a disabled son’s vulnerability as a state of grace

American Journal of Nursing

Blind Spot: Understanding a disabled son’s vulnerability as a state of grace by Diane Stonecipher, BSN, RN

“His IQ may have been devastated, but his EQ has not. He has lived 25 years on this earth and his experiences are valuable and visceral to him.”

Diane Stonecipher is a nurse living and working in Texas. Contact author: bobcipher@yahoo.com. 

National Council for Aging Care’s Comprehensive Guide on Exercising for Seniors

Comprehensive Guide on Exercising for Seniors

When people think about their later years, they usually imagine a life freed from work or career commitments. They hope, too, that this new freedom will allow them to give their full attention to family, friends, and the activities they feel most passionate about. Making this dream a reality, however, requires health and independence, which in turn require a renewed commitment to staying healthy in general and to maintaining that health through exercise.

The good news, though, is that exercise confers all the same benefits to seniors that it does to those earlier in life, including increased longevity, improved mental clarity, a boost in energy, and greater strength to meet the physical demands of daily living. This is true even if you don’t start exercising until your later years. And while older people tend to become more sedentary as retirement and the challenges of old age restrict their activities, that doesn’t mean that you can’t make a reasonable course of exercise a part of your life or the life of a loved one.

With that in mind, here is everything you need to know about keeping an active lifestyle well into your senior years.

Congressional Testimony on Aging – Tamar Heller

Tamar Heller, RRTCDD director, gave testimony before the United States Senate Special Committee on Aging on October 25, 2017. Her testimony addressed a number of issues facing older adults with intellectual and developmental disabilities including changes in health and health promotion, support for family caregivers, and retirement options. Download Full Testimony.

For a video of the entire hearing titled “Working and Aging with Disabilities: From School to Retirement” see the following link: https://www.aging.senate.gov/hearings/working-and-aging-with-disabilities-from-school-to-retirement

Beginning with Disability: A Primer (Paperback) – Routledge

While there are many introductions to disability and disability studies, most presume an advanced academic knowledge of a range of subjects. Beginning with Disability is the first introductory primer for disability studies aimed at first year students in two- and four-year colleges. This volume of essays across disciplines—including education, sociology, communications, psychology, social sciences, and humanities—features accessible, readable, and relatively short chapters that do not require specialized knowledge.

Source: Beginning with Disability: A Primer (Paperback) – Routledge

Lennard Davis, along with a team of consulting editors, has compiled a number of blogs, vlogs, and other videos to make the materials more relatable and vivid to students. “Subject to Debate” boxes spotlight short pro and con pieces on controversial subjects that can be debated in class or act as prompts for assignments.

XCEL Training

XCEL is designed to give quick tips in an entertaining way to reception/support staff who interact with people with developmental disabilities in healthcare settings. It comprises of a 7 minute animated video, a fact sheet, and highlights other resources that are helpful.

 

Source: Florida Center for Inclusive Communities (FCIC)

XCEL Training

Project SEARCH and HealthMatters Program 2017-2018 Employment, Health, and Wellness Webinar Series

  1. Better Health by Health Education & Sustained Employment September 28st, 2017
  2. Promoting Health and Leadership in Project SEARCH® Programs October, 12th, 2017
  3. Integrating Technology to Increase Student Interns’ Health, Fitness, and Personal Responsibilities October, 26th, 2017
  4. Using the Health Matters Curriculum with the Project SEARCH® Program Model January, 18st, 2018
  5. Mindfulness: Strategies for Building Success and Wellness in the 21st Century Workforce February, 15th, 2018


 

PLEASE NOTE

  • There is no cost for these webinars.
  • CEUs are not offered for these webinars.
  • For disability accommodations email Jasmina Sisirak (jsisirak@uic.edu) at least 10 days before the webinars.

The webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

Using the Health Matters Curriculum with the Project SEARCH® Program Model

Source: HealthMatters WebEx Event Center

Event status: Not started (Register)
Date and time: Thursday, January 18, 2018 2:00-3:00 pm (Eastern Time)
Duration: 1 hour
Description:

Project SEARCH is committed to supporting health and fitness education during the transition to employment. Accordingly, Project SEARCH partnered with UnitedHealthcare last year to provide Project SEARCH sites with Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities. More recently, we were awarded a grant from the Ohio DD Council to study the use of the Health Matters curriculum in the context of Project SEARCH. As a first step, we surveyed Project SEARCH Instructors on their experience with the Health Matters curriculum and other health and fitness activities. The purpose was to learn about both the successes and obstacles that instructors encountered. The results of that survey will be presented here, and we plan to gather additional information from members of the audience in an informal focus group discussion. Ultimately, we plan to create and test a clear set of guidelines for integrating the Health Matters curriculum into Project SEARCH in a manner that will optimize learning of health and fitness principles without interfering with the primary Project SEARCH goal of competitive employment.

PRESENTER

Maryellen Daston, PhD, Program Specialist, Cincinnati Children’s Hospital, Cincinnati, OH. Maryellen is a technical writer with a background in biomedical research. Prior to her current position with Project SEARCH, she was involved with research in the field of developmental neuroscience. In her current position, Maryellen works with the Project SEARCH central administration team at Cincinnati Children’s Hospital Medical Center. Maryellen manages the Project SEARCH database and is responsible for editing and writing content for the Project SEARCH website, articles for professional journals, and other communications. She is also involved with researching funding opportunities, writing grant proposals, and overseeing research related to Project SEARCH. In addition, Maryellen co-authored the book on the history, philosophy, and practices that define the Project SEARCH model, “High School Transition that Works: Lessons Learned from Project SEARCH”, Paul H. Brookes Publishing Co.

 

PRESENTATION CONTRIBUTORS

  1. Julie Christensen, PhD, LMSW, Director, Center for Disabilities and Development (UCEDD), University of Iowa, Iowa City, IA. Julie is the Director of Iowa’s University Center for Excellence in Developmental Disabilities (UCEDD), Center for Disabilities and Development (CDD), at the University of Iowa. Prior to joining CDD in May 2016, Dr. Christensen served as the Director of Employment Programs at Strong Center for Developmental Disabilities (UCEDD), at the University of Rochester Medical Center. Dr. Christensen’s background encompasses work in schools, not-for-profits, government and higher education. For the past 14 years, her career has centered around improving quality of life outcomes for at-risk youth, including youth with intellectual and development disabilities, through promoting employment and access to leisure and recreation opportunities in inclusive settings. She has considerable experience developing, administering, and evaluating federal, state and local grant-funded projects with an emphasis on cross-systems collaboration and systems change. She currently maintains a research faculty appointment in the Department of Psychiatry at the University of Iowa Hospitals and Clinics, and adjunct appointments in the Department of Pediatrics, Division of Developmental and Behavioral Pediatrics and the University of Iowa School of Social Work. Her research is in the areas of employment, quality of life, and leisure and recreation participation of adolescents and young adults with IDD.
  2. Dennis Cleary, Co-Director of the Transition, Employment, and Technology (TET) Lab, Columbus, OH. Dennis is an Assistant Professor of Occupational Therapy at The Ohio State University. His primary area of interest is transition services for young adults with disabilities and promoting their employment outcomes In partnership with the Transition group at the Nisonger Center, Dr. Cleary works to test and refine methods to support young adults in academic, social, and work environments through the use of technology, activity analysis, education, and job matching strategies. Dr. Cleary has received funding from the U.S. Department of Education.
  3. Karen Guo is an Occupational Therapy Doctoral Student at The Ohio State University in Columbus, OH.
  4. Beth Marks, RN, PhD, Research Associate Professor, University of Illinois, Chicago, IL. Beth is a Research Associate Professor in the Department of Disability and Human Development, University of Illinois at Chicago, Associate Director for Research in the Rehabilitation Research and Training Center on Aging with Developmental Disabilities, and President, National Organization of Nurses with Disabilities. Beth directs research programs on empowerment and advancement of persons with disabilities. She has published numerous articles and books related to health promotion, health advocacy, and primary health care for people with disabilities. She co-produced a film entitled “Open the Door, Get ‘Em a Locker: Educating Nursing Students with Disabilities.” She has also authored two books published in 2010 entitled Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilitiesand Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program.
  5. Jasmina Sisirak, PhD, MPH, Research Assistant Professor, University of Illinois at Chicago; Chicago, IL. Jasmina is an Associate Director of Training and Dissemination in the Rehabilitation Research and Training Center on Developmental Disabilities and health (RRTCDD) in the Department of Disability and Human Development at University of Illinois at Chicago (UIC). Her research interests consist of nutrition, health literacy, and health promotion for persons with intellectual and developmental disabilities. She coordinates several health promotion projects in the RRTCDD; and has written publications and presented papers in the area of disability, health, and nutrition. Jasmina has co-authored two books entitled Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities and Health Matters for People with Developmental Disabilities: Creating a Sustainable Health Promotion Program.

ACKNOWLEDGEMENT

These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

Integrating Technology to Increase Student Interns’ Health, Fitness, and Personal Responsibilities

 

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Webinar Handouts:

Description:

In this webinar, we will share our success utilizing technology to improve student interns’ health, stamina, and independence. During our first year of our Project SEARCH program we have incorporated 6 Chromebooks, 2 iPads, and Fitbits for every intern. We will demonstrate how we created Google Accounts for each intern so they have access to their own G Suites to create an email address and Google Drive where they create resumes, letters, upload photos, create presentations, and share documents that they will have access to throughout their adult lives. We will also demonstrate how we utilize Google Drive to create a shared Project SEARCH Steering committee folder so all members can collaborate and have access to documents and resources at all times. We will also share how we incorporated Fitbits into daily lessons in combination with Health Matters: The Exercise and Nutrition Health Education Curriculum for People with Developmental Disabilities. Interns record all food and water consumed during the day, plus their daily activity is tracked by logging active minutes throughout the day, calories burned, total steps, and miles traveled during the day. Project SEARCH instructor is able to make connections with intern Fitbit data and Health Matters curriculum for student interns to learn the importance of nutrition and physical activity. We were also able to identify how the Fitbit can be used to make adaptations for the Interns to improve time on task and their time management skills. With the access to two iPads we incorporated a time in and time out app that student interns utilize to sign in and out for their internship rotations and for their lunch breaks. This data is incorporated into real life math lessons.

CEUs: There will be no CEUs provided for this presentation.PRESENTERS

Mason Messinger, Project SEARCH Instructor, Kalahari Resort, Pocono Manor, PA.

Dawn Diagnault, Director of Career Options and Opportunities, Human Resources Inc., Effort, PA. Dawn is the Director of Career Options and Development at the Human Resources Center, Inc. where she has been assisting individuals with disabilities in their employment goals for almost 14 years. Ms. Daignault holds a Bachelor’s degree in Disability studies from CUNY as well as an Associate’s degree in social work. She is a member of the steering committee for the Project SEARCH-Kalahari, Poconos site and serves as the supervisor of the provider agency staff.

ACKNOWLEDGEMENT

These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

Mindfulness: Strategies for Building Success and Wellness in the 21st Century Workforce

Source: HealthMatters Program WebEx Event Center

Event status: Not started (Register)
Date and time: Thursday, February 15, 2018 2:00-3:00 pm (Eastern Time)
Description:

This webinar will discuss the use of mindfulness strategies for building success and wellness among people with intellectual and developmental disabilities (IDD) within their worksites. “Mindfulness tools” will be reviewed for participants to incorporate with their students and employees with IDD in the classroom or in the workplace.

CEUs: There will be no CEUs provided for this presentation.

PRESENTER

Stefanie Patterson, Cape Cod, Riverview School’s Project SEARCH Instructor. Stefanie is a certified English and special education teacher and has been in the field of education for over 20 years. She is also a life-long yoga practitioner and is licensed through Finding Inner Peace Yoga School and is a member of the National Yoga Alliance & the Cape Cod Yoga Association [CCYA] with specialty certifications in pre/post-natal yoga, children/teen yoga and Mindfulness Meditation.

ACKNOWLEDGEMENT

These webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.

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