Healthy Relationships and Healthy Sexuality for People with Developmental Disability

RRTCDD 2016/17 Fall/Winter Health and Wellness Series

Presenter: Susan Kahan, MA, LCPC (skahan@uic.edu)

Play recording (1 hr 4 min)

Download Sexuality and Healthy Relationships PowerPoint Presentation 

Thursday, January 19, 2017

3:00pm | Eastern Daylight Time

Presenter Biosketch:

Susan is the clinical staff at the University of Illinois at Chicago Developmental Disability Family Clinics, Susan, provides individual and group therapy for clients with a broad range of mental health and behavioral concerns, with a special focus on trauma and sexual abuse of individuals with disabilities. Susan’s clients include children, adolescents and adults. As a member of the Coalition Against Sexual Abuse of Children with Disabilities, she provides consultation and training on trauma-focused intervention for children with disabilities to both trauma and disability agencies, and has spoken at national and international conferences on sexual abuse prevention and intervention for people with IDD. She also provides consultation on working with children with disabilities for law enforcement and child protection agencies. In addition, Susan conducts trainings on healthy sexuality and sexual abuse prevention for provider agencies, schools and parent groups.

Abstract

Everyone desires to love and be loved. The myths and misconceptions about people with intellectual and developmental disability (IDD) often lead to rules and restrictions that make healthy relationships difficult to obtain. This webinar will explore the facts and myths around relationships and sexuality for people with IDD. We will discuss the importance of laying the foundation for healthy relations early on through social skills and sexuality education. Resources and strategies for teaching healthy sexuality will be presented. In addition, we will discuss the role of healthy sexuality education as a primary prevention tool for sexual abuse and other strategies to promote sexual abuse prevention.

Learning Objectives

  1. Understand the myths and misperceptions about individuals with IDD and their impact access to education on healthy relationships and sexuality.
  2. Identify tools and strategies for teaching individuals with IDD about healthy relationships and sexuality.
  3. Understand the role of healthy relationship and sexuality education as a primary sexual abuse prevention strategy.

RRTCDD and The Arc 2018 Health and Wellness Webinar Series

Introducing six new webinars hosted by The Arc and made possible through The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). RRTCDD has made significant contributions to advance research and practice across the lifespan for people with intellectual and developmental disabilities (IDD) and their families. We hope these webinars will give attendees useful information and strategies to improve health and community participation among people with IDD.

All Webinars are 3:00 pm, Eastern Standard Time

Webinar 1: Health of Parents with Disabilities – Susan Parish, PhD, MSW – January, 18th, 2018

Webinar 2: Beyond Care Coordination: Cross-Systems Care Integration for Adults with IDD – Nichole Guerra and Betty Geer – February 15th, 2018

Webinar 3: Partnering to Transform Healthcare with People with IDD – Tamar Heller, PhD and Sarah Ailey, PhD, RN, CDDN, APHN-BC – March 15th, 2018

Webinar 4: Anxiety and Depression in Adults with IDD: Prevalence, Risk Factors, and Applications – Kelly Hsieh, PhD and Haleigh Scott, PhD – April 19th, 2018

Webinar 5: Health Promotion in Community Based Organizations: Understanding the Needs and Capacity – Jasmina Sisirak, PhD, MPH and Beth Marks, PhD, RN, FAAN – May 17th, 2018

The webinars are funded through the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD), United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00

Health Promotion in Community Based Organizations: Understanding the Needs and Capacity
Jasmina Sisirak, PhD, MPH and Beth Marks, PhD, RN, FAAN
May 17th, 2018

Webinar 5: Health Promotion in Community Based Organizations: Understanding the Needs and Capacity

3:00 pm, Eastern Standard Time

Register for Webinar

Presenters: Jasmina Sisirak, PhD, MPH (jsisirak@uic.edu) and Beth Marks, PhD, RN (bmarks1@uic.edu)

Abstract: Focusing only on motivating individuals with intellectual disabilities (ID) to change their behaviors oftentimes results in many people returning to unhealthy behaviors because their environment does not recognize the influence and importance of organizational attitudes, policy, and “corporate cultures” on individual behavior change. We evaluated organizational health promotion programs and services, resources, organizational culture and employee’s perception of knowledge, skills and attitudes in over 70 community based organizations (CBOs) in seven states. We will share the results of our findings and recommendations for improving health promotion capacity within CBOs.

Presenter bios:

Jasmina Sisirak, PhD, MPH is an Associate Director of Training and Dissemination at the RRTCDD and the Research Assistant Professor at the Department of Disability and Human Development, University of Illinois at Chicago (UIC). Jasmina received her PhD in Public Health with emphasis in Epidemiology and Community Health. Her research interests consist of nutrition, health literacy, health promotion and curriculum development for people with intellectual and developmental disabilities and their caregivers. Jasmina is also Associate Director of the HealthMatters Program.

Beth Marks, RN, PhD, FAAN is a Research Associate Professor at the Department of Disability and Human Development, UIC and the Associate Director for Research in the RRTCDD. Her research interests include the empowerment and advancement of persons with disabilities through health promotion, health advocacy, and primary health care. She has published numerous articles and books related to health promotion, health advocacy, and primary health care for people with disabilities. Dr. Marks is also the Director of the HealthMatters Program.

Anxiety and Depression in Adults with IDD: Prevalence, Risk Factors, and Applications
Kelly Hsieh, PhD and Haleigh Scott, PhD
April 19th, 2018

Webinar 4: Anxiety and Depression in Adults with IDD: Prevalence, Risk Factors, and Applications

3:00 pm, Eastern Standard Time

Register for Webinar

Presenters: Kelly Hsieh, PhD (hsieh@uic.edu) and Haleigh Scott, PhD (hscott8@uic.edu)

Abstract: Depression and anxiety are the most frequent mental disorders in adults with intellectual and developmental disabilities (IDD). People with IDD may experience more life events due to different living circumstances and limited coping skills. Dr. Hsieh will present current research on risk factors of depression and anxiety and Dr. Scott will provide clinical strategies to help adults with IDD to manage depression and anxiety by improving coping skills to reduce stressors.

Presenter bios:

Kelly Hsieh, PhD is a Research Associate Professor in the Department of Disability and Human Development, and Associate Director of Evaluation and Statistics for the RRTC on Developmental Disabilities and Health. Her research interests explore the relationship between health risk behaviors and health outcomes including obesity, falls, cardiovascular disease, mental health, and dementia across lifespan among individuals with intellectual and developmental disabilities using epidemiological approach. She is also interested in investigating efficacy of interventions to improve well-being and quality of life for adults with developmental disabilities.

Haleigh Scott, PhD (hscott8@uic.edu), is a Postdoctoral Fellow at the University of Illinois at Chicago in the Department of Disability and Human Development.  She is a graduate of The Ohio State University’s Intellectual and Developmental Disability Psychology program. Haleigh’s research focuses on the well-being of people with intellectual and developmental disabilities (IDD). Specifically, she is interested in how psychosocial factors influence mental and physical health outcomes and measurement issues in obtaining health related information from people with intellectual and developmental disabilities.

Partnering to Transform Healthcare with People with IDD
Tamar Heller, PhD and Sarah Ailey, PhD, RN, CDDN, APHN-BC
March 15th, 2018

Webinar 3: Partnering to Transform Healthcare with People with Intellectual and Developmental Disabilities

Thursday, March 15, 2018

Play recording (1 hr 1 min)

Handout: Tackling Health Disparities

Video: Daphne Ron: Good and Bad Experiences with Health Care

Presenters: Tamar Heller, PhD (theller@uic.edu) and Sarah Ailey, PhD, RN, CDDN, APHN-BC (Sarah_H_Ailey@rush.edu)

Abstract: Disparities in treatment of people with intellectual disability in health care leads to increased morbidity and mortality and costs, and decreased quality of life. Proactive work for practical, implementable solutions is needed, as well as consensus and action plans on best practices and research and policy agendas. The Partnering to Transform Healthcare with People with Disabilities Conference provided an opportunity for self-advocates across disability communities (intellectual, physical, sensory and mental) to partner with national experts (providers and policy makers, executives, insurers, regulators and others) to synthesize current innovations and improvement efforts in health care with people with disabilities, reach consensus on best practices, propose needed research and policies, and develop action plans. We will report findings from the conference regarding currently implementable solutions, consensus on best practices and research, and policy agenda recommendations for people with intellectual disability. We invite participants to join the dialogue.

Presenter bios:

Tamar Heller, PhD, Distinguished Professor, heads the Department of Disability and Human Development, University of Illinois at Chicago (UIC) and its University Center of Excellence in Developmental Disabilities. She also directs the Rehabilitation Research and Training Center (RRTC) on Developmental Disabilities and Health, and is Co-PI of the RRTC on Community Living Disability Policy and the Family Support RTC. Her research focuses on health and long-term services and supports for individuals with disabilities and their families. She was President of the Association of University Centers on Disabilities (AUCD) board, and co-founder of the Sibling Leadership Network. Her awards include the 2009 Arc of Illinois Autism Ally for Public Policy Award; the 2008 Lifetime Research Achievement Award, International Association for the Scientific Study of Intellectual Disabilities, Interest Group on Aging; the 2009 Community Support Services Community Partner Award, the 2010 College of Applied Health Sciences, UIC Outstanding Researcher Award, and the AUCD 2012 International Award.

Sarah Ailey, PhD, RN, CDDN, APHN-BC, is a nurse researcher and clinician who works to improve the health and health care of people with disabilities, concentrating on intellectual disabilities. Her research and scholarly practice are concentrated on translating research to community and inpatient hospital settings to improve the lives of individuals with intellectual disabilities. She is investigating the effect of the Steps to Effective Problem-solving (STEPS) program in group homes, funded by an R01 grant from the Eunice Kennedy Shriver Institute. Ailey has been a member of the Americans with Disabilities Act Task Force at Rush University Medical Center since 2003. She also co-chairs (with Robyn Hart) the Adults with Intellectual and Developmental Disabilities Committee at Rush since 2007; the collective work at Rush to improve patient care for this population has been described as the “gold standard” in The Hospitalist, a publication of the American College of Physicians.

Beyond Care Coordination: Cross-Systems Care Integration for Adults with IDD
Betty Geer, DNP, RN, CPNP · Brystal Karber, BA · Nichole Guerra, DBA
February 15th, 2018

RRTCDD and The Arc 2018 Health and Wellness Webinar Series

Webinar 2: Beyond Care Coordination: Cross-Systems Care Integration for Adults with Intellectual and Developmental Disabilities

3:00 pm, Eastern Standard Time

PLAY RECORDING (1 hr 6 min)

Download Presentation Slides

Abstract:

This presentation will define a new experimental role known as the Care Integration Specialist and explain how this role functions within a clinical setting, coordinating care across healthcare and community support systems. Preliminary and anecdotal data will be shared showing how this role positively impacts healthcare and quality of life of individuals with intellectual and developmental disabilities.

Presenter bios:

Nichole Guerra is a Research Coordinator at The Resource Exchange Research Center. She will earn her Doctor of Business Administration in June 2017. Her educational background is in Health Science and Nonprofit Management in the Human Services industry. Mrs. Guerra’s career in the field of intellectual and developmental disabilities began in 2005. She has extensive experience in residential and day program settings, case management, and adapted physical activities.

Betty Geer became Research Center Director for The Resource Exchange in Colorado Springs in September 2016. Her background includes more than 30 years cumulative experience in a broad range of fields, including public health research, nursing, graphic design, economic development, and architecture. She holds five degrees from the University of Colorado: Bachelor of Fine Art, Bachelor of Science in Nursing, Master of Science in Nursing, Master of Architecture, and Doctor of Nursing Practice. Dr. Geer also completed a Postdoctoral LEND Fellowship at JFK Partners at the University of Colorado, Anschutz Medical Campus. She is currently PI for the Care Integration and Quality of Life study, the research portion of the collaborative project entitled Health Coordination for People with Intellectual and Developmental Disabilities (IDD).

Brystal Karber, Bachelor of Arts in Cultural Anthropology and a Teaching Assistant at University of Colorado.

Health of Parents with Disabilities
Susan Parish, PhD, MSW
January, 18th, 2018

Webinar 1: Health of Parents with Disabilities

Play recording (57 min)

View Health of Parents with Disabilities Presentation

Handouts

Presenter: Susan Parish, PhD, MSW (s.parish@northeastern.edu)

Abstract: The health of parents with disabilities is not well understood. Existing research has used small, non-representative samples. The lack of research using national representative data has hindered advocacy and policy-making efforts. In the present study, we used nationally representative data to examine the prevalence rates of chronic physical health conditions among parents with disabilities and compared them to parents without disabilities. We analyzed pooled and linked data from the Medical Expenditure Panel Survey and the corresponding National Health Interview Survey. We examined age-adjusted health differences of US parents with and without disabilities. Outcome measures included obesity, arthritis, asthma, cancer, heart disease, diabetes, emphysema, high cholesterol, hypertension, and stroke. After controlling for covariates and adjusting for age, parents with disabilities had significantly higher odds of having each of the chronic conditions. Parents with disabilities also have significant higher odds of having 2 conditions, 3 conditions, and 4 or more conditions. Parents with disabilities have significantly poorer health than parents without disabilities.

Presenter bio:

Susan Parish, PhD, MSW is Dean of the Bouvé College of Health Sciences and Professor of Health Sciences at Northeastern University. Prior to joining Northeastern University, she was the inaugural Nancy Lurie Marks Endowed Professor of Disability Policy and Director of the Lurie Institute for Disability Policy at the Heller School for Social Policy and Management, at Brandeis University. Her research examines the health and financial well-being of children and adults with disabilities, and their caregiving families. Her work, supported by more than $12 million of external funding over the past decade, has resulted in more than 130 articles, book chapters, policy briefs and monographs, including more than 80 scholarly articles in peer-reviewed journals. She has won numerous national awards including the Padgett Early Career Achievement Award from the Society for Social Work and Research and the Research Matters! award from the Arc of the United States. She is a Fellow of the American Association of Intellectual & Developmental Disabilities and a Fellow of the Society for Social Work Research. She is a member of the National Academy on Social Insurance. A committed educator, Dr. Parish also won numerous awards for her teaching and mentorship at both the University of North Carolina-Chapel Hill and at Brandeis University.

Congressional Testimony on Aging – Tamar Heller

Tamar Heller, RRTCDD director, gave testimony before the United States Senate Special Committee on Aging on October 25, 2017. Her testimony addressed a number of issues facing older adults with intellectual and developmental disabilities including changes in health and health promotion, support for family caregivers, and retirement options. Download Full Testimony.

For a video of the entire hearing titled “Working and Aging with Disabilities: From School to Retirement” see the following link: https://www.aging.senate.gov/hearings/working-and-aging-with-disabilities-from-school-to-retirement

Project SEARCH and HealthMatters Program 2017-2018 Employment, Health, and Wellness Webinar Series

  1. Better Health by Health Education & Sustained Employment September 28st, 2017
  2. Promoting Health and Leadership in Project SEARCH® Programs October, 12th, 2017
  3. Integrating Technology to Increase Student Interns’ Health, Fitness, and Personal Responsibilities October, 26th, 2017
  4. Using the Health Matters Curriculum with the Project SEARCH® Program Model January, 18st, 2018
  5. Mindfulness: Strategies for Building Success and Wellness in the 21st Century Workforce February, 15th, 2018


 

PLEASE NOTE

  • There is no cost for these webinars.
  • CEUs are not offered for these webinars.
  • For disability accommodations email Jasmina Sisirak (jsisirak@uic.edu) at least 10 days before the webinars.

The webinars are hosted by the HealthMatters ProgramTM in partnership with Project SEARCH® and funded by The Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD). The RRTCDD is funded through United States Department of Health and Human Services, Administration for Community Living (ACL), National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), Grant # 90RT5020-01-00, and a grant from the Ohio Developmental Disabilities Council.