Transition of Young Adults with Developmental Disabilities to Adult-Systems of Care

2pm – 3pm CST


Presented by: Kruti Acharya, MD

Dr. Acharya will review the most recent data about health care transition for adolescents and young adults with intellectual and developmental disabilities (IDD). During the webinar, she will describe standard of care for health care transition and highlight strategies to support the transition to adult-centered health care for this population.

Dr. Acharya is a board certified developmental and behavioral pediatrician and internist at the University of Illinois at Chicago and the director of the Illinois Leadership Education in Neurodevelopmental Disabilities (LEND) Program. Dr. Acharya cares for individuals with developmental disabilities using a lifespan perspective from childhood to adulthood. She is particularly interested in supporting adolescents and young adults with developmental disabilities as they transition to adult-systems of care and beyond.

Small Steps, Big Leaps: Healthy Vending in Your Organization

2:00 to 3:00 pm CST

This presentation provides strategies for healthier vending options through the following: (i) steps to developing healthy vending machine initiative; (ii) using tools to survey vending machines and implementing new guidelines; and, (iii) integrating examples and links to resources related to healthy vending machine for your initiative.

Audience: Providers who provide Supports for Community Living services to people with IDD and others seeking to increase healthy options in their organization’s vending machines.

Presenters: Jasmina Sisirak, PhD, MPH and Kristin Krok, CTRS

Vending PowerPoint Presentation

Transcript “Small Steps BIG LEAPS” Presentation 4-6-17

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  1. Healthy Vending Guidelines
  2. Healthy Vending
  3. Vending Machine Inventory Tool
  4. Vending Policy Example

Citation: Sisirak, J. & Krok, K. (2017). Small Steps, Big Leaps: Healthy Vending in Your Organization. HealthMatters Community of Practice Webinar Series. RRTCDD: Chicago, IL.

Social Support Networks of Aging Persons with Intellectual Disabilities

2pm – 3pm CST


Presented by: Lieke van Heumen, PhD

This webinar will discuss emerging research and practice in supporting social networks of adults aging with intellectual disabilities. After a brief introduction on aging in this population, the webinar will discuss the role of social relations in later life and address the state of knowledge regarding the social support networks of older adults with intellectual disabilities. The webinar will provide a discussion of the role of support services in promoting informal networks and conclude with an exploration of the use of social network mapping and life story work in person-centered planning.

Lieke van Heumen is a postdoctoral research fellow at the Department of Disability and Human Development, University of Illinois at Chicago. Lieke’s primary research interest is the intersection of aging and disability with a focus on supports that contribute to aging well. She believes retrieving the lived experiences of older adults with disabilities by means of inclusive and accessible research methods is key to assuring the meaningful engagement of adults with disabilities in the research process.

Aging and Dementia Care for People with Intellectual Disabilities

 Thursday, February 16, 2017

3:00pm | Eastern Daylight Time

Presented by: Matthew Janicki, PhD

Many organizations are seeing the aging of their clientele and their numbers increase, and concerns are growing about how to deal with age-associated effects evidenced with aging. One such age-associated condition, Alzheimer’s disease (and related dementias), affects a significant number of adults with Down syndrome (about 65% of adults age more than 60) and a proportional number of adults with other causes of intellectual disability (about 6% of adults age more than 60). Many at-risk adults live on their own or with friends, and many affected adults live in small community group homes or with their families. How to provide sound and responsive community care is becoming a challenge for agencies faced with an increasing number of such affected adults. This webinar covers key elements of dementia and how it affects adults with intellectual disabilities, provides a brief overview of screening and assessment strategies and methods, and examines ways that organizations can employ to adapt their current services to make them dementia capable. Specifically covered are the elements and types of dementia, as well its onset, duration and effect, and techniques for adapting environments, aiding with staff interactions and communication, as well as challenges to active and supportive programming. Models for supports depending on the stage of dementia are also discussed, as are training foci areas and community care models that provide for “dementia capable” supports and services. Special attention is given to the use of group homes as a viable community care model.

Matthew P. Janicki, Ph.D. is the co-chair of the US National Task Group on Intellectual Disabilities and Dementia Practices, research associate professor in the Department of Disability and Human Development at the University of Illinois at Chicago and Director for Technical Assistance for the Rehabilitation Research and Training Center on Developmental Disabilities and Health (RRTCDD) at the University.

 Play recording (1 hr 4 min)